So I survived Christmas, I think!! It’s been strange as I’m used to having a big family celebration, but this year it was just my parents and I for Christmas dinner, although my brother and his fiancée came over in the morning, and we Skyped one of my aunt’s and the other one phoned. My family have that much faith in me, that the phoned had been taking bets as to whether I would be in hospital or not!!
I was very fortunate that my surgeon gave me the Okay to start doing my TPN again, otherwise I would have had to have somebody in to do it, which would have made Christmas and socialising a bit more complicated. So I was quite relieved about that. Much happier doing it myself, the less people accessing it the lower the risk of infection.
I was thoroughly spoilt, and got some new trainers. The ones I currently use I bought in 2004, and they haven’t been used that much, but I suspect the materials might start to degrade whether worn or not. The new ones are bright purple, with pink and lime green. So no one will mistake them and I might start remembering to pick them up after training!!
I’m heading back to Cambridge tomorrow with any luck. Hoping to head home fairly early and miss the worst of the traffic. I have plenty of presents to open at mine, so I have nice things to look forward to.
The other thing I’m looking forward to and is probably the most exciting thing is that I will be back to training on Saturday. Can’t wait for it, will see how unfit I am though, I dread to think I’m hoping to actually get back in a boat on Sunday, but not sure if we’ve shut down for Christmas break. I hope not.
14/12/12 Things have been a bit hectic here, but seem to be calming down a bit, having said that I’m currently sitting waiting to see the neurologist, whilst also waiting to have surgery this afternoon. The surgery was unplanned, and has put my rowing on hold again. As with most things in my life theres a saga connected to it.
I had an operation on my thumb back in September, where my surgeon tried to stabilise my right thumb MCP, and put a K wire in it to help with the stabilisation procedure. All was fine, I was allowed to erg and train as long as I didn’t use my thumb. Last Wednesday, however, my wonderful surgeon cut my thumb open again to remove the wire, unfortunately when he pulled it out, we discovered it had fractured, and at least half of it is still in my thumb. So I’m back in today to have it out under GA. I’m not great with anaesthetics, as I have a lot of drug allergies, and reflux so they don’t like putting me under, and I tend to be quite nauseated after.
I saw the surgeon who said he was operating, but then as I was heading out to neurology, he said my own surgeon wanted to do it. According to the SpR, I’m a bit of a VIP and a project to my surgeon. I’m glad mine is doing it, as I trust him completely. I’m sure the other surgeon would have done a good job, but I feel more relaxed having my own do it.
23/12/12 The final surgery went fine, although the bruising is rather extensive
and I’m still waiting for my dissolvable stitches to dissolve. The cut they had to make this time is nearly as big as the original surgical cut. I saw my surgeon again on Friday, apparently he had replied to my email, but thinks his secretary has decided to post it rather than emailing, which isn’t very helpful!! He was pleased with the results, thumb doesn’t keep coming apart, which is fantastic, it’s just weird to have such little movement in it, when you’re used to an excessive range.
I complained to him though, as I overheard him referring to me as an ‘old favourite’, I objected to being called old!!
The good news is that I can go back to training, I just need to wear my splint for rowing and other heavy activities for another 4 weeks, and then I shall be free. I also need to draw up a training rota, and ensure I find time to finish my degree!!
In other news I haven’t been around for a while, as I kept bouncing in and out of hospital with seizures and falls, thankfully I know how to treat the episodes, although trying to put a needle into my chest with one side doing its own thing is quite interesting!!
I’m now back at my parents house for Christmas. Doing girly things like getting my hair done tomorrow. I’d been putting it off for a while, but having it done up here means Mum pays which is rather handy.
I’ve been looking into funding opportunities for my rowing today. It’s quite an expensive sport to be involved in, but I’m not going to give up because of lack of money. Something will work out I’m sure. There aren’t many options for individuals until you get to elite level, which is where I hope to be soon, but I’ve come across a few options, so fingers crossed.
I’m also drawing up ideas in my head as to what I want to change in the new year. I don’t think of them as resolutions, just actions to help me get to be who I want to be. I refuse to be defined by my medical conditions, and just want them to be the minor tales in my life.
I shall leave it here, and wish everyone a happy Christmas, and a happy and healthy new year.
Usually I spend my birthday with friends, but this year I had a very quiet one. I’ve done daft things like eat food I know I shouldn’t, but there’s always tomorrow to start to learn to behave!!
I’ve been spoilt by my friends and family, and I am always touched, in fact surprised, that so many people put so much thought into getting me something they know I’ll love. I’m not a big one for emotions, thanks to my Aspegers, but it still makes me warm and fuzzy inside to know people are there for me, even if we go months without speaking.
Some of my friends I’ve never met in real life, but that doesn’t seem to make the friendship any less important to us. In fact it works well for me as I struggle with regular physical contact, so being able to just ignore a text or email for a while has contributed to me maintaining more friendships, than I ever did growing up.
Those who have plenty of RL friends don’t seem to appreciate the benefits of online friends, and seem to treat them with a bit of derision, but it has always been my online friends who notice that I’ve disappeared or have become withdrawn. I could go for weeks in my local community without anyone noticing, oh other than the pharmacy owner who rings if he hasn’t seen me for a few weeks, which I’m not entirely sure says that much about my presence in the local community!!
Unfortunately my health has been a bit of a battle, part of the reason I’m still up is that I’m waiting for my final nebulisers to finish, before I flop into bed. Last week it was weird spasms/ fits and collapsing, which are still a bit of a puzzle, but have stopped again now, so I think they were migraine related.
Consequently I’ve been an even more frustrated rower than usual. Managed to get to the gym today for the first time since I collapsed on Thursday, which has perked me up a bit, and I got a new hoodie from my brother and sister-in-law with
Eat, Sleep, Row
on it for my birthday, which pretty much sums up my life, well if you ignore all the medical stuff and my MSc!!
Well my drugs are all done now, so I’m going to wriggle down into the bed, for a well earned rest, before a week of medical appointments begin.